Tuesday, September 15, 2015

One Year Ya'll

It's hard to believe, but it's been one year since we picked the boys up in their separate province in China.  I have a photo progression of each boy.  You might notice we have more photos in these progressions of Finn.  There's two reason for this.  One, we just have more pictures of Finn than Jake.  His orphanage is home of a lovely American woman who is kind enough to send many pictures of waiting children to their parents.  We have very few pictures of Jake before we picked him up.  The second reason is that Jake remains largely the same, still as cute as ever.  Finn has gone through many significant physical changes since we brought him home.  It's really stunning enough that I want to document it.  As far as I'm aware, I've listed these photographs in chronological order since the day we picked them up.

One year of Jake

These are the only few photos we have of Jake from a short time before he was adopted.  We do have some young pictures of him from when he was in foster care with Love Without Boundaries, but they are too young to represent the last year or shortly before.  Though I did include one that was done by the group on a Throw Back Thursday.








Here's the referral picture we saw on a blog.  This is the first photograph of Jake we ever saw.  It was part of a blog post written by the young man above in the gray shirt.  



Here he is, in chronological order, for the last year!






















One Year of Finn

Finn has many pictures from the orphanage.  I'd like to share them because he was a sick, sick boy when he came home.  And seeing them shows so much more the impact of the way he looks now.


















Here's what we would refer to as his referral picture.  This is the first picture we saw of him on a Facebook group for waiting Chinese children, along with a note saying he was actively dying and the orphanage believed his time was running out.


They were right.  Here's a chronological journey of Finn, from a sick little boy, to a transfusion dependent kid whose life is mostly normal!









































These kids are making a family every day!






So happy One Year Family Day, to two of my favorite gifts!





Friday, May 22, 2015

The Questions

Okay, I've been meaning to type up a post with questions I've been getting asked about our new adoption and the answers, so here it is.

1. ARE YOU JUST GOING TO KEEP ADOPTING FOREVER? ~~ I can't tell you how many people have asked us this. It's actually kind of funny to me, as we're a very small family by most adoptive family standards. But the answer is no. We don't intend to adopt again after this. We always planned to complete two adoptions, with however many children that might mean. So this is not a surprise. We feel that God is already telling us we're being called to a different mission after this adoption. We don't know what it is yet, but I'm sure it will become clear when the time comes. Of course, I know better than to put a period where God might have intended a comma, but we don't anticipate another adoption in the future.

2. DO YOU NEED TO FUNDRAISE THIS TIME, AND HOW CAN WE HELP? ~~ We are lucky enough not to need as much money this time, and our circumstances are different. We didn't have to start by fundraising from the beginning and our new daughter came with a fairly large grant. That being said, we do need to fundraise again. Just not as much. If you would like to help, prayers are always appreciated and we also have another YouCaring page set up. You can find it here. http://www.youcaring.com/the-anderson-family-358277 We really appreciate any help or prayers others can offer.

3. WILL YOU ADOPT 2 AGAIN? ~~ I'm also surprised how much we've been asked this question. The answer is, we don't know. Currently, we are only adopting one. We are HS approved for 2, so it isn't impossible, but we currently have not submitted LOI for another child.

4. TELL US ABOUT THE BABY! ~~ She turned two in November, near to Gillian's birthday. By the time we pick her up, she will be three. She lives somewhere in Inner Mongolia. I won't share where because that would be too much information, but I'm really interested in learning more about Inner Mongolia, and even just Mongolia. She has the same special need as Jake, Hemiplegic Cerebral Palsy and brain differences, but her case is classified as mild, whereas Jake's needs are moderate. Her weak side is her right and Jake's is his left. But it will be good to already know what we're getting into. We will probably name her Elizabeth Jane. Jane is after my great-great grandmother, Jane Fenix, who was the daughter of an Irish immigrant who came to America as an indentured servant and a Blackfoot indian trail guide. How did they meet? No one knows. But she defied so many expectations to forge her way to the life she wanted. Elizabeth is in honor of Elizabeth DeHority, whose was so pivotal in our journey to bring the boys home. Both women are examples of strength and courage, something I'd love to pass down to each of my children, not just the newest Anderson!

Amber

Wednesday, May 20, 2015

Seven Months!

It's been seven months!  The boys are doing really well.  I'll give a brief run down on both, if you're interested.

Emotional:

Finn's PTSD is improving.  When he first got home, if someone touched him in his sleep he would scream.  Now I can pick him up and move him while he's asleep and he doesn't even wake up!  He has severe nightmares almost every night, and night terrors as well, but while he's awake he seems to be doing much better.

Jake is still working on emotional regulation, but we don't see nearly as many hysterical meltdowns as we did when he first got home.  He's learning that we try to be fair and he doesn't always have to fight.  This means a lot to him and he's relaxing.  He's a good kid most of the time, and tries hard to help.  Sadly, he's a big of a dyed in the wool misogynist, which is likely the product of years being raised in China.  He's pretty open about his disdain for girls, and we're hoping that goes away before he's old enough to date lol.  Americans just aren't as accepting of that in a person as the Chinese are.





Medical:

Finn is doing so much better, it's almost inconceivable that he's the same kid.  His spleen has shrunk to the point that it is almost nearing the normal range.  We aren't yet to the point that we can move transfusions to three weeks apart like most thalassemia children, but we're getting there hopefully.  Last month, he had 16 teeth removed, all baby teeth, that were rotted to the core.  We had hoped that would give him more sustainable hemoglobin levels, as he was riddled with infection, but so far, we aren't seeing that yet.  His iron levels in his liver are very, very high.  Honestly, they are at twice the level where doctors worry about permanent cirrhosis, and the meds we are using aren't doing the job as well as one might hope.  We can't raise his medication dose, because his kidneys are feeling the burden.  We're trying to get him on a second medication for iron chelation, as well as staying on the first medication, but the insurance company is making it very hard to get approval.  Overall, Finn's condition is so much better than it was, but it's still a long road to get him healthy.

Jake's condition has honestly been a non-entity in our lives.  I know it effects his self confidence, but the effect on the way he lives in negligible.  We couldn't get in here in New Mexico, so we drove up to Colorado Children's in Denver, where the neuro team was able to easily conclude that he doesn't have hydrocephalus, nor has he ever had it.  So he was shunted for no reason.  While this is technically good news, as he can't suffer the side effects of something like shunt failure, it's a problem to decide how to handle all the pointless hardware in his head.  Hardware can get infected and it's dangerous, but brain surgery when the situation is not emergent is also dangerous.  That's one we haven't decided yet.  We were told he was paralyzed on the left side.  That's turned out not to be true, as well.  He has hemiplegia cerebral palsy, which means his left side is weak, but not paralyzed.  He probably could have had normal function with proper physical therapy.  We're hoping therapy now will help to at least improve muscle tone in his left arm so he can use it to stabilize things in his other hand, hold open a door, etc.  Of course, he'll never have complete function with his left side, but we hope he can use it for a few things.




The Family:

We're all doing very well.  For a few months, I wasn't writing, but I am back to work, and those awaiting names in books to give to friends and family, please continue to have patience.  They're coming.  Mike's job is always the same, but he did just reach a new pay grade and with two new children, of course that's much appreciated.  Seth is about to start high school in the fall.  Evie and Jake both graduated from 5th grade the other day, so that means middle school for them.  I prefer to homeschool through middle school and I really wanted to help Jake become a better reader before letting him continue on with public school.  He desperately wants to go to school with his friends, and leaving he and Evie in a position to compete with each other probably isn't the best idea.  So he will be going to school per his request (every single day pretty much) and Evie will be homeschooled.  Finn graduated from kindergarten last week.  He actually has ten adult teeth, so in all likelihood, he's much older than 6, but we have no intention of aging him up.  He's very small and emotionally fragile, so we want him just where he is.  He'll be going on to first grade next year, and baby Gillian will be starting kindergarten.  Where does the time go?  Cue weeping mommy here.  We weren't planning to move forward with another adoption quite so quickly, but we found our daughter, so we are.  Sometime in early 2016, we expect to travel for our new daughter, who will be 3 by then, and whom we will probably name Elizabeth.

The Future:

We hope to spend some time meeting with Jake's friends from his orphanage during the summer.  It means a lot to him to remain in contact with his China "family" and we love to encourage that.  We thought we would be spending the summer in Texas, but that is not currently the plan.  Finn was approved for Make A Wish, and he wants to go to China again, but I'm not sure if that's a possibility.  We'll see what they say!




Thanks for dropping by and checking in!

Amber  

Wednesday, January 28, 2015

FOUR Months!

Where does the time go?  The boys have been home for FOUR MONTHS yesterday!  I post a lot on Facebook, but I don't blog nearly as much.  There's a couple of reasons for this.  My computer isn't great and blogging on my phone is a pain in the butt.  So, that's just laziness.  Number two, so many things about these boys seems to be private to their life and their stories and I'm never sure what I should be sharing and what I should keep in the family, because their journey is theirs, even when people want to share it.  The quandary of how much to share usually just stops me from sharing anything!

Jake is a good kid who generally wants to do the right thing.  Emotional regulation isn't the easiest for him, and he has some not great habits when he gets upset.  We're working on those.  He's growing A LOT in terms of bonding.  He was not particularly open to affection in the beginning, but he's really opening up to us, finally.  He's got a quirky personality, loves friends and sports, but does NOT love school lol, and enjoys seeing his grandparents.  Jake's favorite things are talking to his orphanage friends who have already been adopted, watching Power Rangers, and taking selfies.  This kid is the selfie king!  If I set the phone down, I'll come back to a dozen crazy pictures of Jake! Here's some of his favorite faces!


Jake's specialists have been hard to pin down and we're hoping to have more info on the nature of his brain injuries in March when we have an appointment at the Denver Children's Hospital, since getting into Nuero-sciences in New Mexico has proved to be pretty much impossible.  It's about a five hour drive, but it's worth it as UNMCH hasn't even processed his referral yet.  The earliest they could see him if they processed his referral this minute is late summer.  We're excited to see what information this helps provide for us.

Finn is doing very well medically.  He came to us in pretty rough shape, but he's bouncing back.  He's got a pretty rigid medical process to accommodate his potentially very dangerous special need.  We like to nip possible issues in the bud by offering treatment before they become an issue! 

This regimen includes blood transfusions every two weeks at this time.  In the future, the hope is that we will be able to drop back to every three weeks, or even once a month!
Here he is at his last transfusion getting a visit from daddy over lunch!  Finn came to us with some major medical PTSD, but he's slowly learning that China and America are not equal when it comes to medical care.  He also takes medication to remove the iron from his blood and organs, called chelation meds.  He takes these every night to prevent the very serious side effects that iron build up can cause.  The majority of children in China die from iron, so this is very important. 
He likes to take his Exjade, the chelation meds, in pink cups.  He loves everything pink!  If his HgB is allowed to drop too low, he really doesn't feel well. 

But we can still get a smile out of him most times. 

The boys are bonding pretty well to each other and with the other kids. 
 Just one of the girls?

 Pretend ice cream is best in winter.

 Scooters rock!


Super kids!

In case you're curious, Finn is eating a tomato straight in this super picture of he and Jake.  Because that's how super heroes roll.  

They are adorable and we just love having them here!  We can't thank the people who participated in our fundraisers and helped us to bring them home by donating or helping to spread the word.  They are loved!

Amber